Organisations that offer support and information about brain injury and neurological conditions

Association of Personal Injury Lawyers (APIL)

0115 943 5400

The Association of Personal Injury Lawyers (APIL) is a not-for-profit organisation, which exists to fight for the right of injured people. APIL offer information, guidance and support for those injured as a result of someone else’s negligence and can direct you to a personal injury lawyer in your area.

Brain and Spine Foundation

0808 808 1000

This charitable organisation provides tailored information and specialist support to anyone affected by a neurological condition.

British Association of Brain Injury Case Managers (BABICM)

0161 762 6400

This professional association was established to promote the development of case management in the field of acquired brain injury.  It represents the professional interests and concerns of case manager who work with those who have suffered an acquired brain injury or other complex condition that requires co-ordinated rehabilitation, care and support.  It can direct you to a brain injury case manager.

Different Strokes

0345 130 7172

Different strokes is a registered charity providing a free service to younger stroke survivors in the UK.  The charity is run by stroke survivors and offers self-help and mutual support to enable stroke survivors of working age to optimise their recovery, take control of their own lives and regain as much independence as possible.

Encephalitis Society

01653 699599

This is a UK based charity set up by people affected by encephalitis.  They offer support and information to adults and children affected by encephalitis, produce evidence-based information on all aspects of the condition, raise awareness and conduct research.

Epilepsy Action

0808 800 5050

This is a UK member-led epilepsy organisation, which acts as the voice of people with epilepsy, their friends, families and health professionals.  As well as campaigning to improve epilepsy services, they also offer support and assistance.

Epilepsy Society

01494 601400

Epilepsy Society is the UK’s leading provider of epilepsy services. They run a helpline for people with epilepsy and also carry out medical research.

Equality and Human Rights Commission

0808 800 0082

This commission is a good source for expert information, advice and support on discrimination and human rights issues and the applicable law.

Gov.uk

This website provides helpful information for disabled people and their carers on a range of topics such as benefits and financial help, disability equipment and transport and disability rights.

Headway-The Brain Injury Association

0808 800 2244

Headway provides help and support to people affected by brain injury. Through a network of more than 125 groups and branches across the UK, it provides support, services and information to brain injury survivors, their families and carers.

Huntington’s Disease Association (HDA)

0151 331 5444

This association supports people affected by the disease and provides information and advice to professionals whose task it is to support Huntington’s Disease families.

Meningitis Now

0808 801 0388

Meningitis Now provides support for people whose lives are affected by meningitis. Services include counselling, art therapy, home/ hospital visits and financial support for families affected by the illness.

Momentum

0141 419 5299

Momentum is a not-for-profit organisation. Their services help a wide range of people including those with a brain injury, spinal injury, mental health difficulty, physical or learning disability in the areas of employment and training, job retention and community rehabilitation.

Motor neurone disease association

01604 250505

The MNDA supports people with Motor Neurone Disease and those who care for them, in England, Wales and Northern Ireland. They offer information and practical day-to-day support to enable people with MND to live with their diagnosis and achieve the best quality of life. In Scotland, you can contact www.mndscotland.org.uk.

Multiple Sclerosis Society

0808 800 8000

This is a membership organisation for people affected by Multiple Sclerosis (MS).  The society funds research, runs respite care centres, provides grants, education and training on MS and also produces publications on MS and runs a specialist helpline.

Multiple Sclerosis Trust

0800 032 3839

This is a UK charity which provides information for anyone affected by Multiple Sclerosis (MS).  They offer education programmes to health professionals, fund practical research and campaign for specialist MS services.

NHS Choices

An information website from the National Health Services on conditions, treatments, local services and healthy living.

Patient UK

A website that provides good quality information about health and disease.

Scottish Huntington’s Disease Association

0141 848 0308

This is a small charity established by families living with Huntington’s Disease (HD). They provide specialist family support services and a network or specialist services for people living in Scotland.

Spinal Injuries Association

0800 980 0501

The Spinal Injuries Association is a national charity dedicated to helping people with spinal cord injuries rebuild their lives. They offer information and support and run a free telephone helpline.

Stroke Association

0303 303 3100

The Stroke Association is a UK charity that helps people who have been affected by a stroke. They fund medical research and help stroke patients and their families by providing information, advice and support.