Organisations that can offer support and advice for young people and their families

British Institute for Brain Injured Children (BIBIC)

01458 253344

This is a national charity offering practical help to families caring for children with conditions such as autism, cerebral palsy,  Down’s syndrome, developmental delay, traumatic and acquired brain injury and specific learning difficulties such as attention deficit hyperactivity disorder, dyslexia and dyspraxia.

British Institute for Learning Disabilities (BILD)

0121 415 6960

This is a national charity committed to improving the quality of life for people in the UK with a learning disability. They achieve this by influencing policy-makers and other decision-makers, encouraging good practice among practitioners and helping people with a learning disability take charge of their own lives.

Challenging Behaviour Foundation

0300 666 0126

The Challenging Behaviour Foundation exists to demonstrate that individuals with severe learning disabilities who are described as having challenging behaviour can enjoy normal life opportunities when their behaviour is properly understood and they receive individualised support.  The foundation supports families, professionals and others through education, information, research and partnership working.

Child Brain Injury Trust

01869 341075

This is a charity providing support to children and families affected by brain injuries that happen after birth (acquired brain injuries).

Childline

0800 1111

Childline is a free, confidential helpline for children and young adults offering help and advice on a wide range of issues.

Encephalitis Society

01653 699599

This is a UK based charity set up by people affected by encephalitis.  They offer support and information to adults and children affected by encephalitis, produce evidence-based information on all aspects of the condition, raise awareness and conduct research.

Epilepsy Action

0808 800 5050

This is a UK member-led epilepsy organisation, which acts as the voice of people with epilepsy, their friends, families and health professionals.  As well as campaigning to improve epilepsy services, they also offer support and assistance.

Epilepsy Society

01494 601400

Epilepsy Society is the UK’s leading provider of epilepsy services. They run a helpline for people with epilepsy and also carry out medical research.

Equality and Human Rights Commission

0808 800 0082

This commission is a good source for expert information, advice and support on discrimination and human rights issues and the applicable law.

This website provides helpful information for disabled people and their carers on a range of topics such as benefits and financial help, disability equipment and transport and disability rights.

Foundation for People with Learning Disabilities

0207 803 1100

This is part of the Mental Health Foundation charity and is a charity that works to promote the rights, quality of life and opportunities for people with learning disabilities and their families.  They provide information, carry out research and work to improve services.

Gov.uk

This website provides helpful information for disabled people and their carers on a range of topics such as benefits and financial help, disability equipment and transport and disability right

Mencap

0333 270 0567

Mencap is an individual membership organisation for people in England, Northern Ireland and Wales with learning disabilities. They provide practical support and advice for people with a learning disability and their families and carers.

National Autistic Society

0808 800 4104

This is a UK charity for people with autism (including Asperger’s syndrome) and their families.  They provide information, support and services.

National Youth Advocacy Service (NYAS)

0808 808 1001

This is a UK charity offering information, advice, advocacy and legal representation to children and young people up to the age of 25 years.

NHS Choices

An information website from the National Health Services on conditions, treatments, local services and healthy living.

Patient UK

A website that provides good quality information about health and disease.

Speak Up

0303 123 7013

Speak Up provide advocacy services and resources for people with learning disabilities, mental health issues and physical disabilities.

Young Minds

0207 089 5050

Young Minds is a national charity offering information to young people and children about mental health and emotional wellbeing. They run a telephone helpline for parents and carers worried about a child or young person.